Understanding mitochondrial disorders, is far more complex than just shouting “we need a cure”, what we need are many objectives, improved understanding of complex management…
A very heartfelt thank you to #AChorus4Corah (Founders) Carl & Lisa Slaney and #TeamCorah who have Raised in total £1,107.66 from raffles, selling page etc.
The Children’s Mitochondrial Disease Network was formed April 1998. 2018 marks our 20th Anniversary and 20 years supporting Mitochondrial Disorders, both Nuclear & Mitochondrial DNA Disorders, Inborn Errors of Energy Metabolism and Inherited Metabolic Diseases. Patient Advocacy, Research, Education & Awareness.
THE WAIT IS OVER!…Are you ready for 12 hours of terror? Face your fears and step up to be one of the first people to participate in a #SpookySleepover4Corah @ The Village, Mansfield on 20th January 2018
Big Thank You. To Royal Mail and Postman Kevin Stokes, who raised a whopping £610.00
The Children’s Mitochondrial Disease Network, welcomes the following peer revived paper written and collaborated by the The Mitochondrial Medicine Society.
The MMS has developed Preventative Care Guidelines for patients with Mitochondrial Disease. The publication is in Genetics in Medicine and available here.
Lisa Slaney with husband Carl Slaney, friends and family known as #TeamCorah launched and created AChorus4Corah in memory of their daughter Corah-Beth Slaney, taken without mercy by#MitochondrialDisease aged just 17 years.
In memory & celebration of Corah, Kristen, Stacey & Kieran. Mitochondrial Disease Awareness Week 2017 Sept. 16th – 23rd.
We’d like to take this opportunity to thank the parents and carers, mummies and daddy’s of the following children, for permission to use their very personal pictures and memories in recognition of Mitochondrial Awareness Week 2017.