Raising Awareness During World Mitochondrial Disease Awareness Week – September 2017
Is being featured and giving a great deal of publicity within the UK media and social media community at present time. Although we cannot comment specifically about this case, family or UK hospital involved. We are aware of the extremely complex, ethical and emotional issues being discussed.
There has been lots
Tickets are now available for The Purple Ball – Friday 19th May 2017
The Purple Ball, will take place on 19th May 2017 at Portland College in Mansfield. The Ball will raise money for raisetheroof4Corah and the Children’s Mitochondrial Network.
Tickets are priced at £49.50 and includes a welcome cocktail, a fabulous
May we take this opportunity to wish families and professionals in the UK and every country around the world, a safe and peaceful New Year 2017.
“Mitochondrial Disease is a worldwide group of disorders, together we are better, together we can fight better as one”.
Here’s to the next 12 months. Redifining this opinion.
Prof Doug Turnball and Paul Preston at the HFEA Mitochondrial Overview Meeting and UK Law Change 2015
Mum’s Rachel Preston (Stacey, Kristen & Kieran’s Mummy) & Lisa Slaney (Corah’s Mum) united together – #AChorus4Corah & The Children’s Mitochondrial Disease Network
“Providing Information, Support & Understanding for all known Mitochondrial Disorders”
A selection of the 100’s of photo’s taken on Saturday the 17th September, Festival Hall, Kirkby in Ashfield, Nottingham, featuring, Carl and Lisa Slaney, Hosts and Compares, Katie Trinder DJ – Mansfield 103.3FM and Lee Roberts – Haunted Events UK, on stage at the fundraiser #AChorus4Chorah, #RaiseTheRoof4Corah.
On behalf of The Children’s Mitochondrial Disease Network & TeamCorah, may I take this opportunity to introduce you to our new Charity Patrons; Lee Roberts – Haunted Events UK & Katie Trinder – DJ & Presenter Mansfield 103.2FM.
We are absolutely delighted to have both Lee & Katie on board
Founded by Paul Preston after his daughter died aged only 8 weeks on the 18th November 1992 at the Royal Manchester Children’s Hospital. Kristen Lesley Preston, the 3rd child of Paul & Rachel Preston, Kristen presented with poor feeding and floppiness from birth, while she was considered a quite baby.