THE WAIT IS OVER!…Are you ready for 12 hours of terror? Face your fears and step up to be one of the first people to participate in a #SpookySleepover4Corah @ The Village, Mansfield on 20th January 2018
Big Thank You. To Royal Mail and Postman Kevin Stokes, who raised a whopping £610.00
The Children’s Mitochondrial Disease Network, welcomes the following peer revived paper written and collaborated by the The Mitochondrial Medicine Society.
The MMS has developed Preventative Care Guidelines for patients with Mitochondrial Disease. The publication is in Genetics in Medicine and available here.
Lisa Slaney with husband Carl Slaney, friends and family known as #TeamCorah launched and created AChorus4Corah in memory of their daughter Corah-Beth Slaney, taken without mercy by#MitochondrialDisease aged just 17 years.
In memory & celebration of Corah, Kristen, Stacey & Kieran. Mitochondrial Disease Awareness Week 2017 Sept. 16th – 23rd.
We’d like to take this opportunity to thank the parents and carers, mummies and daddy’s of the following children, for permission to use their very personal pictures and memories in recognition of Mitochondrial Awareness Week 2017.
There are many perspectives, options and quotes, like colours of the rainbow. We are never to judge. But these are particularly accurate.
The Absolutely Amazing – Andrea Porter completed her Mt. Snowdon Climb for The Children’s Mitochondrial Disease Network
Courtesy: Lisa and Carl Slaney in Memory of their beloved daughter “Corah-Beth Slaney” lost to mitochondrial disease, supporting The Children’s Mitochondrial Disease Network, during world Mitochondrial Disease Awareness Week 2017.
Paul & Rachel Preston (founders) CMDN share their children’s mitochondrial journey with BBC Northwest Tonight presenter Eno Eurotor.