The Children’s Mitochondrial Disease Network was formed April 1998. 2018 marks our 20th Anniversary and 20 years supporting Mitochondrial Disorders, both Nuclear & Mitochondrial DNA Disorders, Inborn Errors of Energy Metabolism and Inherited Metabolic Diseases. Patient Advocacy, Research, Education & Awareness.
The Children’s Mitochondrial Disease Network, welcomes the following peer revived paper written and collaborated by the The Mitochondrial Medicine Society.
The MMS has developed Preventative Care Guidelines for patients with Mitochondrial Disease. The publication is in Genetics in Medicine and available here.
In memory & celebration of Corah, Kristen, Stacey & Kieran. Mitochondrial Disease Awareness Week 2017 Sept. 16th – 23rd.
We’d like to take this opportunity to thank the parents and carers, mummies and daddy’s of the following children, for permission to use their very personal pictures and memories in recognition of Mitochondrial Awareness Week 2017.
There are many perspectives, options and quotes, like colours of the rainbow. We are never to judge. But these are particularly accurate.
The Absolutely Amazing – Andrea Porter completed her Mt. Snowdon Climb for The Children’s Mitochondrial Disease Network
Paul & Rachel Preston (founders) CMDN share their children’s mitochondrial journey with BBC Northwest Tonight presenter Eno Eurotor.
THE family of a Northwich teenager who died following a battle with a rare disease said their final goodbyes yesterday.
Heartbreak of sister Stephanie Preston who has lost three siblings to ‘cruel and vicious’ illness
A HEARTBROKEN dad has spoken out after his 18-year-old son lost a life-long battle with a chronic debilitating condition.