Understanding mitochondrial disorders, is far more complex than just shouting “we need a cure”, what we need are many objectives, improved understanding of complex management…
The Children’s Mitochondrial Disease Network was formed April 1998. 2018 marks our 20th Anniversary and 20 years supporting Mitochondrial Disorders, both Nuclear & Mitochondrial DNA Disorders, Inborn Errors of Energy Metabolism and Inherited Metabolic Diseases. Patient Advocacy, Research, Education & Awareness.
THE family of a Northwich teenager who died following a battle with a rare disease said their final goodbyes yesterday.
Heartbreak of sister Stephanie Preston who has lost three siblings to ‘cruel and vicious’ illness
Is being featured and giving a great deal of publicity within the UK media and social media community at present time.
May we take this opportunity to wish families and professionals in the UK and every country around the world, a safe and peaceful New Year 2017.
“Mitochondrial Disease is a worldwide group of disorders, together we are better, together we can fight better as one”.
Prof Doug Turnball and Paul Preston at the HFEA Mitochondrial Overview Meeting and UK Law Change 2015
Mum’s Rachel Preston (Stacey, Kristen & Kieran’s Mummy) & Lisa Slaney (Corah’s Mum) united together – #AChorus4Corah & The Children’s Mitochondrial Disease Network
“Providing Information, Support & Understanding for all known Mitochondrial Disorders”
A selection of the 100’s of photo’s taken on Saturday the 17th September, Festival Hall, Kirkby in Ashfield, Nottingham, featuring, Carl and Lisa Slaney, Hosts and Compares, Katie Trinder DJ – Mansfield 103.3FM and Lee Roberts – Haunted Events UK, on stage at the fundraiser #AChorus4Chorah, #RaiseTheRoof4Corah.