Understanding mitochondrial disorders, is far more complex than just shouting “we need a cure”, what we need are many objectives, improved understanding of complex management…
Paul & Rachel Preston (founders) CMDN share their children’s mitochondrial journey with BBC Northwest Tonight presenter Eno Eurotor.
Is being featured and giving a great deal of publicity within the UK media and social media community at present time.
May we take this opportunity to wish families and professionals in the UK and every country around the world, a safe and peaceful New Year 2017.
“Mitochondrial Disease is a worldwide group of disorders, together we are better, together we can fight better as one”.
Founded by Paul Preston after his daughter died aged only 8 weeks on the 18th November 1992 at the Royal Manchester Children’s Hospital. Kristen Lesley Preston, the 3rd child of Paul & Rachel Preston, Kristen presented with poor feeding and floppiness from birth, while she was considered a quite baby.
The funeral has taken place for a young women who inspired her family to change the law.
Nicola & Craig’s Parachute Jump for Mitochondrial Disease in Memory of “Ellie”